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Rising from despair

The remote village of Reu in Vietnam, was once home to mysterious illness that haunted its residents for over a decade. Now, it has emerged from the shadows

QUANG NGAI, VIETNAM (ANN/THE VIETNAM NEWS) – In the mountainous region of Vietnam’s Ba Dien Commune, Ba To District, central Quang Ngai Province; Reu Village, once plagued by a mysterious illness for over a decade, has finally found peace.

The community has witnessed a remarkable transformation – sturdy houses now dot the landscape, concrete roads have replaced rough pathways, and vibrant green paddy fields have replaced abandoned ones.

Despite these positive changes, the village’s history is still marked by painful memories.

Over 12 years ago, Reu Village was struck by a sinister disease referred to as the “mysterious illness,” claiming the lives of many residents. Fear and anxiety gripped the community as new cases emerged daily, leading to deaths, mass migration, children dropping out of school, and fields lying fallow.

In the span of just three years, from 2011 to 2014, 264 people in Ba Dien Commune were afflicted by a rare skin condition affecting their palms and soles, with 24 fatalities, with Reu Village being particularly hard-hit.

Phạm Van Dech, a culture officer in Ba Dien commune. PHOTO: ANN/THE VIETNAM NEW

Time has passed, and the pain has slowly receded, but every mention of the “mysterious illness” still causes anguish to Pham Van Dech, a culture officer in Ba Dien commune. The disease took away two loved ones, his wife and young child, and marked the beginning of a dark chapter for Reu Village.

Dech recalls that in October 2010, his healthy three-year-old child suddenly developed swollen, ulcerated skin on the face and limbs.

He immediately rushed the child to the district’s health facility, but after three to four days, they were transferred to Da Nang. Even in Da Nang, the doctors couldn’t diagnose the disease, and it eventually claimed the life of his child.

The nightmare continued as by the end of 2011, his wife displayed similar symptoms – facial swelling and ulceration on her hands and feet. Dech took his wife to Quy Nhon and even Hue for treatment, but the doctors were unable to identify the cause.

In early 2012, his wife passed away, leaving Dech as the sole survivor in his family, and he himself was afflicted but fortunately recovered, unlike his wife and child.

“By the end of 2011, my wife started showing signs of facial swelling and skin ulcers. We took her to Quy Nhon, then Hue for treatment, but even the doctors there couldn’t identify the disease.

She passed away in early 2012. I also contracted the disease, but I was lucky to recover, while my wife and child followed Yang (God),” Dech told a local newspaper.

Subsequently, numerous medical experts, both local and international, including teams from the provincial health department, the Ministry of Health, and the World Health Organisation (WHO), arrived to investigate, gather data, and collect samples of water, soil, food, blood, and hair from the patients. The goal was to understand the causes of the disease and develop treatment methods.

Nonetheless, deaths continued to afflict the villagers, challenging the healthcare system. Some families, with three or four members suffering from this disease, saw their death toll rise steadily.

Desperate to find a cure, the villagers resorted to sacrificial rituals, including slaughtering chickens and pigs, and performing ceremonies in the mountains to ward off the “ghostly disease.”

Yet, despite the offerings, the villagers remained afflicted. Even the village’s shamans were so frightened that they left, leaving the people to fend for themselves.

Reu Village is home to 103 households with nearly 300 residents, primarily from the Hre ethnic group, who make up 98 per cent of the population.

With the help of various levels of government and different departments, the villagers rallied to rebuild their lives. They focused on cultivating rice, planting rubber trees, and developing livestock farming.

As a result, no household in the village suffers from food shortages as they did in the past, many have seen an improvement in their economic situation, and they have built more comfortable homes.

Thanks to the tireless efforts of medical experts, both local and international, the mystery behind the “mysterious illness” was gradually solved, bringing peace back to this village nestled among the hills.

Transformation

When visitors come to Reu Village, they are greeted with a serene and idyllic landscape – lush, vibrant paddy fields, a well-paved road leading to the village, and a sense of tranquility in the air. It’s hard to believe that this village once experienced the hardship and suffering caused by the “mysterious illness.”

Phạm Van Dech pointed out that a suspension bridge spanning Nuoc Ne Stream was constructed and put into use in early 2016. The day of its inauguration was a day of celebration, as it meant that the villagers were no longer at the mercy of the stream’s swelling waters during the rainy season.

Taking us on a tour of the village, Dech proudly highlighted the transformation: the previously gravel road leading into the village has been replaced with a concrete one, and many public works and cultural facilities have been built, improving the residents’ quality of life. Electricity now lights up the streets and alleyways.

However, the most significant change is in the mindset and lifestyle of the villagers. “Thanks to the involvement of local authorities and the healthcare sector, the people of Reu Village came to understand that there was no ‘ghost’ causing the illness. It was primarily due to their difficult lives, outdated eating habits, and limited access to healthcare,” explains Phạm Thị Ui, a 43-year-old resident of Reu Village.

“New ways of thinking and doing things have brought Reu Village closer to modern living. People no longer keep livestock beneath their stilt houses; each family has its own livestock pens. Practices like storing food above smoky fires or leaving rice in thatched huts, leading to moisture and mould, are no longer common. The villagers have learned how to preserve their crops after harvesting and the importance of visiting the health station when they’re unwell. It’s a new way of life,” Dech says.

Alongside other village residents who have endured the loss of loved ones, Dech has worked diligently to build a new life. He now has a new family with a preschool teacher from the local area, and they have two young children together.

Lingering Concerns

The disease may be a thing of the past, but those who once suffered from it in Reu Village are now concerned about its lingering effects, such as vision and hearing impairment. Despite having been cured of the disease for several years, some individuals are still grappling with these post-illness complications.

Phạm Thị Xao, a 67-year-old, is among those who have experienced these complications. She has partial hearing loss and says, “a few years ago, I went to the provincial hospital for an examination and treatment, but my condition did not improve.”

Phạm Thị Xao recounts the lingering effects of the mysterious illness. PHOTO: ANN/THE VIETNAM NEWS

The disease has also affected her daughter-in-law, Phạm Thị Trieu, who has suffered from vision problems. Despite seeking treatment from various places, her condition has not improved. Dech, too, has experienced vision problems, which he believes are a consequence of the disease he once battled.

Phạm Van Enh, Deputy Chairman of the People’s Committee of Ba Dien commune, confirms that the majority of individuals who were treated for the skin condition, which affected their palms and soles, are now grappling with complications such as vision and hearing impairment, to varying degrees of severity. Approximately ten cases face severe complications and are currently receiving treatment in various hospitals.

“Local authorities, as well as the residents of Reu Village, hope that the relevant authorities, at all levels, will pay attention to their request. They are urging the Ministry of Health and related agencies to visit the locality, conduct examinations and assessments, and provide comprehensive treatment for the complications of this disease. This would bring much-needed peace of mind to the people,” Enh states.

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